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Privacy Policy

We are Knowledge Center Pediatric Palliative Care. We work on optimizing the quality of care for children in the palliative phase and their families. We work together in a large national network of healthcare organisations, industry, professional and patient associations.

In this privacy statement we explain how we handle your personal data. Safety is paramount here. This is important. For you and for us. We therefore treat and process your data with great care. This privacy statement is for everyone from whom we request, store and send personal data.

Security of your data

We think it is important that your personal data is well protected. Your data is therefore treated with great care and only processed in accordance with the General Data Protection Regulation (GDPR). In addition, we secure our buildings, systems, networks and servers and all our employees have a duty of confidentiality. Your data will only be used by employees who need it to execute your agreement with us.

What are personal data?

Personal data is data:
  • who tell something about you;
  • that can be traced back to you.
Examples of personal data are your name, address or place of residence.

Special personal data

Special personal data are sensitive data that are extra protected. Examples include health data.

Health data

Our medical advisors are responsible for the safe handling and processing of your health data. The medical adviser is always bound by medical confidentiality in this regard. Other employees only use your health data if they belong to the functional unit of the medical adviser. And only if they need this information to perform your agreement with us. These employees have the same duty of confidentiality as the medical advisers.

What do we collect personal data for?

We use your personal data for various purposes. We list them for you:

  • information about pediatric palliative care
  • sending newsletters and other information
  • handling questions, requests and wishes
  • the possibility to participate in training courses and conferences and the financial settlement thereof
  • improving our information provision and tailoring the information to the recipients

Apart from the aforementioned processing purposes, the Knowledge Center for Palliative Care for Children does not process your personal data without your prior consent.

Website, newsletter, offers and customer surveys

  • We like to keep our relations informed. For example, with newsletters and training courses that we think may be of interest to you. You will receive information on how to unsubscribe with every newsletter or announcement.
  • We think it is important that our customers are satisfied. We occasionally invite you for a customer satisfaction survey. With every invitation to participate in this you will receive information on how to unsubscribe.
  • When you visit our website or follow us on social media, we remember your interests and preferences. We can store information on your computer in the form of a cookie for this purpose. You can read information about cookies and how to disable or delete them in the Cookie Statement. This way we can show you personalized content or offers that are of interest to you. In this way we prevent you from seeing information that is less relevant to you. We never use special personal data for this.
  • In addition, we process a number of data from you in order to provide and technically manage the functionality of our website and mailings. We process technical data for this purpose. Examples of this are the IP address of the device with which you visit our website, the web pages visited, clicking and surfing behaviour, the internet browser used and the duration of your visit and session. The application forms log error messages and similar data that we need to ensure the operation of our applications and to investigate and resolve disruptions. Personal data can be recorded with these reports if this is necessary to guarantee operation.

Comply with the law

We use personal data to comply with our legal obligations.

With whom do we share personal data?

We only share personal data if this is necessary to provide the requested service or action. We make agreements with the parties that process personal data on our behalf about the use and security of that data, so that your data is also safe there.
  • We are legally obliged to pass on certain personal data. For example, to the Tax and Customs Administration, our accountant, the Ministry of Justice or the Dutch Data Protection Authority.
  • We also engage other companies to perform services for us that are related to the knowledge center. These are, for example, trainers, cooperation partners, digital agencies and communication companies.
  • We can also outsource work to so-called processors. For example, we use external service providers for declaration control and settlement and for our e-mail traffic or telephone accessibility.
If your data is passed on to parties in countries outside the European Economic Area (EEA), we will ensure that the data is adequately protected. If necessary, we will make additional agreements with these parties.

How long do we store personal data?

We do not store your data longer than necessary. In some cases, the law determines how long we may or must store data. In other cases, we have determined ourselves how long we need your data.
After the retention period has expired, we can still store your data after we have made it anonymous. The data can then no longer be linked to you.
If you have specific questions about this, you can contact the Data Protection Officer , see contact details .

What are your rights?

You have a number of legal rights in relation to the processing of your personal data. Below we briefly explain each right. The exercise of these rights is sometimes subject to conditions. More information about this can be found on the website of the Dutch Data Protection Authority.
  • Right of access
The right of access is arranged in a secure manner. You may also want certain specific information, for example with which categories of parties we share your personal data. You can submit a request for this. Please state in your request which data you wish to view.
  • Right to be forgotten
Do you want us to delete all personal data that we have recorded from you? Then we will investigate whether this is possible. We cannot always delete your data. This is not possible, for example, if this is in conflict with the law. This occurs if we have a legal retention obligation.
  • Right to object
You have the right to object to data processing by us. A balance will then be made between your and our interests in the processing. Does your privacy interest outweigh our interest? Then we will stop processing. Do you object to the use of your personal data for direct marketing? Then we will stop that processing immediately.
  • Right to restriction of processing
In some situations you have the option to temporarily 'stop' the processing of your personal data by us until a problem or objection has been resolved. We may then only process the personal data under certain conditions.
  • Right to portability of personal data (data portability)
You have the right to obtain a 'machine readable' copy of the personal data you have provided to us.

Using your rights

Do you want to make use of one of the above rights? Then you can submit a request to our Data Protection Officer. This can be done via the contact details below. Please state clearly in your message which right you wish to exercise. We may ask you to identify yourself further. We do this to ensure that we send the data to the right person. We may also contact you if your request is not clear to us. You will receive a written answer to your message within 1 month.

Contact details Data Protection Officer

  • Send an email to:
  • Send a letter to:
    Pediatric palliative care knowledge centre
    Attn: the Data Protection Officer
    Mercatorlaan 1200 3528 BL Utrecht

To ask

Do you have a question, comment, suggestion or complaint on the subject of privacy? You can also contact our Data Protection Officer. This is possible via the contact details above.

Authority for Personal Data

Do you have a complaint about the processing of your personal data? Then we would like to see if we can find a solution with you. Can't we figure it out together? Then you can submit a complaint to the privacy supervisor, the Dutch Data Protection Authority. You can contact the Dutch Data Protection Authority for this.

About this privacy statement

This privacy statement may change if new developments give cause to do so. You will always find the most current privacy statement on our website. This version was last modified on November 1, 2022.