Dutch Centre of Expertise in Children's Palliative Care

Everything about care for children with a life-shortening or life-threatening illness and their families. We are committed to further improving pediatric palliative care as an area of expertise and to include it permanently and sustainably in the Dutch healthcare system. On this site you will find information about what pediatric palliative care is exactly, help and support, project information, news and experiences of others.

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Dutch Centre of Expertise in Children's Palliative Care

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Regional Networks (NIK)

For parents and involved healthcare professionals

The regional Integral Child Care Networks (NIK) are for parents of children who need intensive and/or child palliative care and for the care professionals involved around the family. A NIK is a network of experienced (care) professionals. Together they ensure that families get the help they need, now and later. Not only for the child that needs care, also for parents, brothers & sisters. The Netherlands has seven regional Integrated Child Care Networks. Together they have national coverage and all seven NIK work together a lot.

Contact

As a parent, do you want support from a Network Integral Child Care? Please contact the NIK in your region. The NIK also supports healthcare providers. As a healthcare professional, do you want to register a family with an NIK, or do you have any questions? Feel free to contact us.

Featured project

Pediatric Palliative Care Support

Individueel Zorgplan 3.0

Individueel Zorgplan 3.0

Na intensief en meerjarig onderzoek in samenwerking met ouders en zorgprofessionals kan vanaf nu het vernieuwde Individueel Zorgplan (IZP) gebruikt worden. Een zorgplan dat écht aansluit bij de wensen en verwachtingen van ouders en zorgverleners.

Individueel Zorgplan 3.0

Signpost Integral Child Care

Signpost Integral Child Care

As a parent of a child who needs intensive and/or pediatric palliative care, you suddenly find yourself in the world of care, institutions and laws. This Guide helps to get an overview when it comes to aids, school & care, treatment choices and work & care. For each subject you will find tips, information about money and rules and help desks.

Signpost Integral Child Care

How do parents experience the care for their terminally ill child?

How do parents experience the care for their terminally ill child?

How do parents experience the care for their terminally ill child? You can read their stories on this platform. About what is going well and what could be improved. And what that means for them. Fellow sufferers find support and recognition here. Healthcare providers and policymakers can learn from it.

How do parents experience the care for their terminally ill child?

Talk about care & treatment together

Talk about care & treatment together

As a parent of a sick child, you want to receive the care and treatment that suits you and your family. This applies when things are going well given the circumstances, but certainly also when things are not going well. That is why it is important for the child, parents and caregivers to share with each other how you look at the future.

Talk about care & treatment together