Advance Care Planning in Pediatrics

Advance care planning is a communicative process that enables children and parents to formulate their values, goals and preferences for future care and treatment and to discuss these goals and preferences with clinicians and relatives.

IMPACT provides materials for clinicians, children and parents to support involvement in advance care planning. Please find the IMPACT materials below.

Materials for clinicians

Advance Care Planning (ACP) in Pediatrics

This document provides you with an explanation of what Advance Care Planning (ACP) is and also offers you suggestions for conducting ACP discussions with children and parents. ACP discussions are different from regular consultations or conversations. ACP discussions explore how a child and his/her parents approach life and what they consider to be important. The purpose of this exploration is to better align decisions about the child’scare and treatment with the values, preferences and needs of the child and family.

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Inviting families for an ACP conversation

Information card that offers you suggestions to invite families for an ACP conversation.

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Conversation with child and parents

Conversation guide to support you in conducting ACP conversations with children and parents.

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Conversation with parents

Conversation guide to support you in conducting ACP conversations with parents.

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Pocketguide IMPACT

Pocket guide with an overview of the key themes of ACP conversations.

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Materials for parents

What do you consider important for your child?

This leaflet helps you to prepare yourself for a conversation with your doctor or nurse about what is really important to you.

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Form for care and treatment wishes – parents

You can use this form to write down care and treatment wishes after a conversation with your child’s doctor or nurse. You can keep it for yourself to remember the key points of the conversation or you can share it with others.

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