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Projects

Linkedin

Linkedin: @JA Hope4Kids

Contact

Contact information: wp2@kinderpalliatief.nl

Partners

International Children’s Palliative Care Network (ICPCN)

ICPCN is a global network seeking to improve acces to children’s palliative care. ICPCN’s network includes members in more than 140 countries. Members have access to ICPCN’s newsletter and online resources including educational content in many languages. ICPCN advocates for access and quality of children’s palliative care with the World Health Organization and other global platforms.

ICPCN

European Association for Palliative Care (EAPC)

EAPC is a professional organization “committed to supporting the promotion and development of palliative care throughout Europe and beyond”. Our Center staff frequently attend and present at the EAPC annual conference. In addition they serve in leadership positions and support the administrative work of the EAPC Reference Group for Children and Young People. Our Director, Meggi Schuilling-Otten is currently Chair of the EAPC Reference Group for Children and Young People. This group serves to promote children’s palliative care throughout Europe.

European Association for Palliative Care

Maruzza Foundation

The Maruzza Foundation works to ensure the right to access palliative care for all children who need it. The Maruzza Foundation hosts the Maruzza International Congress in Rome, a major gathering for paediatric palliative care researchers and clinicians.

Maruzza Foundation

Resources

Courageous Parents Network

CPN aims to orient, equip and empower families and others caring for a child with a serious medical condition and provide digital resources and an extensive media library used by families and clinicians.

Center to Advance Palliative Care

The Center to Advance Palliative Care is a US based organization that has supported the growth of palliative care as a specialty clinical service since 1999. Their website offers free resources on pediatric program development, marketing of palliative care, and educational offerings for operations managers and clinicians. Program Development. 

Center to Advance Palliative Care

Childhood Cancer International

CCI is the largest childhood cancer patient support organization, with member organizations in more than 100 countries.

Childhood Cancer International

Together for Short Lives (TFSL)

TFSL is a UK based organization that provides family support (emotional and financial), advocates for children’s palliative care in the UK, and providers resources to clinicians working with children who have life-limiting illnesses. TFSL also hosts an online provider network where clinicians can share expertise with one another.

Research Resources

International News

The human touch – what machines can never replace

How technology can support daily practice and why human presence with children and families remains irreplaceable.


Jan Romportl is a Czech AI researcher and philosopher with nearly 20 years of experience. After a distinguished academic career, including a PhD in AI, a master’s in cybernetics and philosophy, and leadership at the University of West Bohemi, he transitioned to industry as Chief Data Scientist at O2 Czech Republic. He later founded Dataclair.ai, the AI Center of Excellence for PPF/O2, and now offers independent consulting focused on AI strategy, ethics, safety, and societal impact. He remains actively engaged in AI alignment and safety communities and is known for his ethical insight and visionary thinking.

In September 2025, the EAPC Reference Group Children & Young People spoke with Jan about the role of AI in healthcare. We asked him a question many professionals have on their minds:

Jan, is there any way AI can support me as a healthcare professional?

AI will mostly help in areas related to curative care, where it will have tremendous impact. Palliative care will benefit wherever it shares the same tools with curative care, such as medication, pain management, and even physical support of patients as robotics catches up with non-physical AI and accelerates its development. Another important field with direct impact is AI-powered training tools for palliative professionals (e.g., support for communication training).

However, there will also be important indirect effects. As AI transforms curative healthcare, the role of medical staff will shift from “technicians routinely fixing human machines” to “real caregivers and companions to human beings.” Much of the diagnosing and fixing will eventually be done by AI. So what will be the new role of many doctors? They will provide care and human guidance to patients. And they will have to learn this from palliative professionals, whose core job is exactly this. This transformation will open significant opportunities for palliative care to become more deeply integrated into the healthcare system.

Screenshot 2025-08-31 at 17.56.43

You have already mentioned some areas, but are there any specific tools, platforms, or innovations being tested or used already?
Specifically for palliative care, I know of some excellent projects around communication training. The shared space with curative care is huge, with projects ranging from pharma to robotics. And there is one more field emerging specifically around palliative care—but this one is ethically tricky: digital immortality. Near-future AI tools will be very good at simulating people’s behaviour, including voice and visual appearance, based on the data generated by them when they were alive.

Do you mean that the digital traces we leave today might make us immortal in the future? That is both scary and promising.
Yes, exactly. I believe near-future AI tools will indeed be able to simulate people’s behaviour, including voice and appearance, based on the data generated while they were alive.

What are the main ethical concerns or limitations when using AI in palliative care in general, not only in the context of digital immortality?
Human presence is absolutely crucial and must remain—and even flourish—not replaced by AI in the moments where “being human” makes the real difference. For example, “using ChatGPT to give patients in hospices to fake human care” is a very dangerous road. Digital immortality also requires serious ethical attention because it is closer than many people are willing to believe.

It seems that many dilemmas will arise soon. Can we do something not to lose our human touch?
AI can actually help caring professions to grow and flourish, because “human touch” and “being human” will, in the long run, be the only domains where humans can excel over machines. To put it in a simplified yet illustrative way: “When I’m telling you about my pain or joy and you are a person close to me, my mirror neurons must be able to mirror that your mirror neurons mirror my pain or joy.” If this loop is missing, we suffer emotionally. And this loop is created only in human-to-human connection, not human-to-AI. The main role of AI here is to free humans from many other tasks and give them space, energy, and time to fully care for one another.

That sounds promising and raises my hope that more people will work in caring professions, as other jobs will be done by AI.
That is indeed optimistic, and I see where you are going. AI can also be present with a patient whenever a human caregiver cannot. This 24/7 availability is valuable, as long as it does not replace human touch. We can already see parallels in psychotherapy: AI can lower the threshold for clients to find a human therapist, help bridge waiting times before appointments, and provide support between sessions.

You mentioned psychotherapy. Do you know of anything specifically relevant to children’s palliative care?
I am mostly aware of applications shared with curative care, such as:

  • caregiver chatbots (guidance on symptom severity, next steps, post-discharge support, etc.),
  • prototypes of Retrieval-Augmented Generation (RAG) AI agents for 24/7 on-demand information about medications, conditions, and care decisions,
  • Natural Language Processing (NLP) techniques for documentation processing and quality measurement,
  • AI assistants for family education and information access.

I have also seen indirect applications where AI supports administration, back-office processes, and even fundraising for children’s palliative care.

Jan, thank you for your time. Read more about Jan on his webpage.


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