Talk about your child's future
As a parent of a seriously ill child, you have a lot to deal with. Often there is a lot of uncertainty. Still, you have to make decisions about your child's care and treatment. How do you see your child's future? Do your child's caregivers know what you think is important for your child and why you think this?
Your child's doctor or nurse may invite you for a meeting to discuss your child and the future together. Together you can discover which care and treatment suit your child and family. You can also request an interview yourself. On this website you will find materials to prepare for such an interview.